Check out our blog to find out about research projects that are looking for patient input, meet some of our current Patient Advisor partners, and stay up to date on PAN happenings!
The CERTAIN Patient Advisory Network began in 2012 as part of a research study focused on peripheral arterial disease (PAD). Our initial goal was to invite patients who have experienced PAD to give us advice on recruiting and retaining study participants. Thanks to Patient Advisor input, our study participant retention rate in that study is at 90%. Building on this great success, in 2013, we focused on increasing our relationships with patients to inform other research within CERTAIN. 2013 was focused on growth and relationship building with members of the community, both individual patients and patient advocacy organizations. In 2015, we are continuing to expand by focusing on tools, resources, and other opportunities to support patient-researcher partnerships.
Our Mission: The CERTAIN Advisory Network seeks to improve research by providing a way for patients to work in collaboration with researchers throughout the research process — from the identification of research questions to the communication of the results.
Danielle leads CERTAIN Patient Voices, an initiative to incorporate the patient perspective into both quality and research activities through the capture of patient-reported outcomes and active patient engagement. Her goal is to broaden collaborations between researchers and patients to ensure the most important questions are addressed (and solved) to improve health care. Danielle, born and raised in Kansas, left after completing pharmacy school and has now lived on both coasts. She moved to Seattle from Baltimore in 2012 with her husband (Ben) and English Bulldog (Clancey) and has quickly adopted the NW life of hiking, biking, and spending as much time outdoors as possible – rain or shine. In 2014, Danielle and Ben welcomed thier son Nicholas into the family.
Sarah is the Project Manager of Stakeholder Engagement for CERTAIN. In this role, she works to successfully engage all of CERTAIN's partners in meaningful conversations that help direct CERTAIN activities. Originally from Kentucky, Sarah has bachelors degrees in Sociology, Political Science, and Women's Studies from Western Kentucky University, and a masters degree in Social Sciences from The University of Chicago. She has lived in Seattle since 2007 and currently shares her home with her fiance Jeff and 12 year-old cocker spaniel Ella.