Patient Voices Network Blog

New Project in Breast Cancer Seeks Focus Group Participants

Discussions between CERTAIN Patient Advisor Vicki Diguilio and University of Washington surgeon Sara Javid resulted in the development and subsequent funding of a research project focused on improving information collected from women undergoing surgical procedures for breast cancer. In 2012, CERTAIN began collecting information about quality of life, well-being, and physical perception among women following surgery for breast cancer. The information is important to understanding how women are doing following surgery but limited in its ability to inform breast cancer quality improvement activities in an actionable way that will improve care delivery. To develop and inform a new approach, we are conducting surveys of surgeons and members of the breast cancer surgical care team to hear from them what they think are the most important aspects of quality of life (e.g., body image, physical function, emotional well-being) and treatment decision-making for them to address when treating their patients. We will also be conducting a series of focus groups with women who are up to 2 years out from having a mastectomy to treat their breast cancer, to find out what they feel is most important for surgeons to know about their patients given their experiences. If you are interested in learning more about the study, please contact us.


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