The first projects to be funded by the Patient-Centered Outcomes Research Institute (PCORI) are nearing their completion, and research results are ready for communication to the community of providers and patients who can use the information produced by PCORI-funded studies to make better healthcare decisions. PCORI is invested in making sure that results of the research they fund are made available widely in formats and language that are easily understandable for non-scientists and scientists alike. This goal is being accomplished in many ways that go beyond traditional publication in scientific journals, including peer review of final research reports submitted to PCORI that includes patients and other stakeholders; posting of all PCORI-funded results on ClinicalTrials.gov or another appropriate public database, and development of public summaries of all research results for posting on PCORI’s website.
To complement this work, it is also important that the impacts its studies are having on patient and provider decision-making are highlighted. To that end, PCORI is hoping to talk with people who have made decisions based on the results of a PCORI-funded comparative effectiveness research (CER) study, as well as people who can help them make the argument that having the evidence a PCORI-funded study can produce is essential in helping them making decisions that they otherwise would have had trouble making due to lack of information or unclear choices on what works best for them.
Have you made decisions that have been informed by the results of a PCORI-funded study? We want to hear your story! Please contact us to tell us more.
For more information on PCORI’s efforts to widely communicate the results of the research it funds, check out their blog post on the subject.