Current Initiatives

What Our Patient Advisors are Currently Working On...

mPOWEr

  • Who: Sarah Han (member of study team); 6 others for key informant interviews
  • What: project design, app usability and pilot testing
  • Input Provided: perspective of older/less tech savvy patients, importance of guidance for avoiding would infection while handling phone for photo, setting shared expectations
  • Affects of Input: improvements in app use instructions, brought attention to importance of setting shared expectations between patients and providers
Strong for Surgery
  • Who: Patient Advisors at quarterly Steering Committee meeting (group feedback)
  • What: feedback on approach to collecting patient information
  • Input Provided: consider role of Primary Care Physicians in getting ready for and recovering from surgery and appropriateness of Strong for Surgery materials in that arena, explain the “why” behind recommendations, present information in a variety of ways – people want information differently.
  • Affects of Input: tailoring information presented to patients according to patient preferences, engaging primary care physicians in Strong for Surgery workflow

Peripheral Arterial Disease (PAD) Study

  • Who: Patient Advisors at quarterly Steering Committee meeting (group feedback)
  • What: feedback on study participant retention plans
  • Input Provided: skew larger rewards to end of participation – “at 9 months post-op, I’m no longer thinking about PAD” so need larger incentive at 12 months, provide educational materials early on while patients still have PAD in mind
  • Affects of Input: flipped retention plan to include educational newsletter at 3 months, token at 9 months, increased incentives at 12 months

Current Opportunities

We are currently looking for Patient Advisor partners with experience and/or interest in the following areas:

  • Appendicitis
  • Breast Cancer
  • Diverticulitis
  • Spine issues, particularly chronic back pain
  • Preparing for Surgery

Contact us if you are interested in learning more, and check out our blog for more information on projects and initiatives in which you can get involved.