CERTAIN works to affect change across all aspects of the healthcare system through a broad range of activities, including healthcare operations improvement, healthcare information technology, public health campaigns or initiatives, and research. The work of CERTAIN is not possible without the participation of patients who are living with the disease or condition being studied. Patients who are willing to share their experiences, perspectives, and in some cases, health information is vital to the success of CERTAIN's projects and initiatives that aim to improve how healthcare is delivered.
The Frequently Asked Questions below are meant to provide information that you can use to learn more about the work of CERTAIN and how you can get involved. If you are interested in learning more about research, or in finding a research study to participate in, click here.
Patient-Centered Outcomes Research (PCOR) helps people and their caregivers communicate and make informed health care decisions, allowing their voices to be heard in assessing the value of health care options. This research answers patient-centered questions such as:
-Given my personal characteristics, conditions, and preferences, what should I expect will happen to me if I choose this treatment?
-What are my options for treatment, and what are the potential benefits and harms of those options?
-What can I do to improve the outcomes that are most important to me?
-How can clinicians and the care delivery systems they work in help me make the best decisions about my health and healthcare?
What are patient-reported outcomes?
Patient-reported outcomes (PROs) provide the patient’s perspective on how they feel in relation to a health condition and its treatment. This information is often captured through questionnaires. PROs are important for understanding outcomes of greatest importance to patients “How will I feel?, Will I be able to do the things I enjoy doing?”. PROs are used alongside traditional clinical measures in research.
Do you have questions that aren't answered in this section? Contact us to let us know!